Educational Programme
Developing and delivering a multimodal educational programme for patients, families and healthcare professionals.
About TIF Education
TIF Education is the central hub for the Thalassaemia International Federation’s educational conferences, meetings, workshops and webinars on thalassaemia and other haemoglobin disorders.
It brings together our global educational activities in one secure and easy‑to‑use online environment, making it simpler to discover upcoming events, participate and stay connected over time.
Where and with whom we work
TIF is based in Nicosia, Cyprus, and its work extends worldwide through country visits, workshops and meetings with competent bodies. It forms networks with health authorities, patient organisations, medical and scientific communities, academic institutions, public‑health‑related agencies and the pharmaceutical industry, and has been in official relations with the World Health Organization (WHO) since 1996.
Thalassaemia International Federation (TIF)
The Thalassaemia International Federation (TIF) is a patient‑oriented, non‑profit, non‑governmental umbrella organisation, established in 1986 by a small group of patients and parents who were active in national thalassaemia associations in Cyprus, Greece, the UK, the USA and Italy.
Today, TIF brings together a broad network of member associations and partners from many countries across the world, representing the global thalassaemia community and working to safeguard the rights of patients to quality health and other care.
What we do
To address the needs of the global thalassaemia community and to achieve its mission, TIF’s work is organised around several key pillars:
Collaborations
Building collaborations and networks with competent health authorities and international partners.
Projects
Designing and implementing targeted projects to support prevention and care at country and regional level.
Research
Contributing to and promoting research efforts in the field of thalassaemia and related haemoglobin disorders.
Our People and Community
TIF Education is developed and supported by a diverse global community of patients, parents, healthcare professionals and experts who share a common commitment to improving the lives of people with thalassaemia and other haemoglobin disorders.
Governance and leadership
The overall direction and priorities of TIF’s educational work are guided by the Federation’s governance and leadership bodies, which ensure that all activities remain aligned with our mission, vision and strategic plans.
Scientific and Patient Community
TIF’s educational activities bring together international medical experts, nurses and other healthcare professionals, patient leaders and advocates, policy‑makers and partner organisations who contribute as speakers, authors, reviewers and mentors across our events and digital platforms.
- Patients and families sharing lived experience and priorities.
- Healthcare professionals contributing clinical expertise and best practices.
- Policy‑makers and health authorities shaping effective programmes and policies.
- Partner organisations supporting outreach, capacity building and advocacy.
“Through this broad and inclusive community, TIF Education ensures that every activity reflects real‑world needs and promotes practical, patient‑centred solutions.”
Our Educational Events
TIF organises a wide range of educational events designed to share knowledge, strengthen skills and support collaboration among patients, families, healthcare professionals and other stakeholders in the field of thalassaemia and haemoglobin disorders.
Types of events
Through TIF Education, you can explore and participate in different types of educational activities, including:
International conferences
High‑level global meetings bringing together experts, patient representatives and policy‑makers to discuss advances, challenges and priorities in thalassaemia care and prevention.
Regional conferences
Region‑focused meetings addressing specific needs, health‑system contexts and policies in different parts of the world.
Workshops and training meetings
Practical activities focused on capacity building, clinical management, laboratory practice and patient empowerment.
Webinars and online sessions
Regular online events providing updates, case discussions and focused learning opportunities, often later made available through TIF’s digital platforms.
The TIF Education Online Hub
This platform has been developed to bring all TIF educational events together in one place, offering a clear overview of upcoming activities and secure online tools to support registration, participation and follow‑up.
What you can do here
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Browse international conferences, regional meetings, workshops and webinars organised or supported by TIF.
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Review essential event information, including dates, locations, formats, programmes and key speakers where available.
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Complete online registration for selected events, including options with or without accommodation where applicable.
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Submit applications for sponsorships or other support for specific events through dedicated forms when these are offered.
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Access post‑event materials such as programmes, presentations and certificates, according to each event’s arrangements.
One account for multiple events
With a single TIF Education account, participants can manage registrations across multiple events, view their upcoming and past activities, access their certificates and, where relevant, review accommodation bookings and payment history.
TIF’s Digital Education Platforms
In addition to in‑person and hybrid events, TIF offers dedicated digital platforms that extend access to education, training and resources for patients, families and healthcare professionals worldwide.
TIF e‑Academy
The TIF e‑Academy hosts structured online courses for patients, families and healthcare professionals on key aspects of thalassaemia and sickle cell disease, combining expert content with flexible, self‑paced learning.
“It is designed to complement TIF’s conferences and meetings, allowing participants to deepen and update their knowledge between events.”
TIF e‑Academy
The TIF e‑Academy hosts structured online courses for patients, families and healthcare professionals on key aspects of thalassaemia and sickle cell disease, combining expert content with flexible, self‑paced learning.
“It is designed to complement TIF’s conferences and meetings, allowing participants to deepen and update their knowledge between events.”
TIF Education At a Glance
Since 2010
400+
Events Hosted
International conferences, regional meetings, workshops, and webinars
20+
Countries Visited
Educational activities delivered across multiple regions and health systems.
20K+
Participants Attendees
Patients, families, healthcare professionals, and other stakeholders reached
20K+
Online learners
Learners reached through TIF’s e‑Academy and the TIFLIX video library.
Get involved in TIF Education
By taking part in TIF’s educational activities, you help strengthen knowledge, improve care and support better outcomes for people living with thalassaemia and other haemoglobin disorders around the world.